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International Initiatives in
       Cancer Pain


    Kathleen M. Foley, MD
        April 24, 2012
New Global Initiatives in Pain and
           Palliative Care

• IASP Montreal Declaration on pain relief as a
  fundamental human right

• A World Medical Association Declaration on access
  to pain relief

• Human Rights Watch reports on access to pain
  relief and palliative care
      -India
      -Kenya
      -Ukraine
New Global Initiatives in Pain
         Palliative Care

• World Medical Association calls for pain
  and palliative care services within the
  right to health framework and supports
  their integration as human rights issues

http://www.wma.ne
New Global Initiatives in Pain and
         Palliative Care

• Four Human Rights Watch Country
  Reports describe the human rights abuses
  related to lack of access to pain relieving
  drugs in:
                India
                Kenya
                Ukraine
http://www.hrw.org/
“Please , do not make us suffer
                             anymore…….”




            Access to Pain Treatment as a Human Right
In this 47-page report Human Rights Watch said that countries could significantly
improve access to pain medications by addressing the causes of their poor availability.
These often include the failure to put in place functioning supply and distribution
systems; absence of government policies to ensure their availability; insufficient
instruction for healthcare workers; excessively strict drug-control regulations; and fear
of legal sanctions among healthcare workers.
  http://www.hrw.org/en/reports/2009/03/02/please-do-not-make-us-suffer-any-more
http://www.hrw.org/sites/default/files/reports/health1009webwcover.pdf
http://www.hrw.org/features/kenya-government-failure-provide-palliative-care-children
Uncontrolled Pain
Ukraine’s Obligation to Ensure Evidence-
          Based Palliative Care




  http://www.hrw.org/reports/2011/05/12/uncontrolled-pain
People with debilitating       50 Milligrams is Not Enough
illnesses are left to die in
excruciating pain as a
result of restrictions on
pain medicines. Health
care workers must be
allowed to provide
patients with relief from
severe pain



Vlad is suffering from incurable brain cancer. Despite his chronic pain,
doctors in Ukraine are only allowed to prescribe 50 mg of pain medicine.
In another country, doctors would typically prescribe more than 2,000
mg for a patient like Vlad.
             http://www.stoptortureinhealthcare.org/
New Global Initiatives in Pain and
        Palliative Care

• The International Association of Hospice and
  Palliative Care has:
• Developed an essential drug list for palliative
  care medications
• Consists of 34 medications, 14 currently on
  the WHO Essential Drug List
http://iahpcnews.com/
New Global Initiatives in Pain
      and Palliative Care
• WHO Essential Drug Program has created an
  office for addressing Access to Controlled
  Substances as essential medicines
• Appointed Willem Scholten as program director
• Has developed a strategic plan with NGO
  partnerships including the ATOME project
WHO Access to Essential Medicines
Program for Controlled Substances
• To improve access for opioid drugs in low and
  medium resource countries

• Published two recent documents:
• “Guidelines for Persistent Pain in Children”
  “Ensuring Balance in National Policies on
  Controlled Substances”
New Global Initiatives in Pain and
         Palliative Care

• UN General Assembly Meeting on Non-
  Communicable Diseases:
• Calls for the integration of pain and
  palliative care into health care services
New Global Initiatives in Pain and
         Palliative Care
• New WHO Collaborating Centers in Palliative Care
  have been recognized:
   Barcelona, Spain
   Kerala, India and Trivandrum, India
   Kings’ College, London
   Sir Michael Sobell House, Oxford
   Pain and Policy Studies Program, the University
    of Wisconsin,USA
New Global Initiatives in Palliative
              Care
• Lien Foundation: Life Before Death initiative
  www. lifebeforedeath.com
• TREAT THE PAIN Campaign
  http://www.treatthepain.com/
• OSF Campaign: Stop Torture in Healthcare
  http://stoptortureinhealthcare.org/
Global Access to Pain Relief
     Initiative (GAPRI)
• Supported by International Union Against
  Cancer (UICC)
    -global advocacy initiative
    -raise awareness for policy change
    -focus on cancer patients
  (http://www.uicc.org)
GAPRI Strategy

                                      Intl policy


                                    Suppliers              GAPRI Pain Treatment
         GAPRI Supplier                                      Advocacy Project
           Network
                                Multi-country global
                                 health programs



GAPRI Envoy               National policies and programs
 Program
                                                                       GAPRI
                                     Facilities                      Fellowship
                                                                      Program
New Global Initiatives in Pain and
        Palliative Care
• OSF IPCI Leadership Development Initiative:
  supports 44 leaders in palliative care from resource
  limited countries to develop skills and knowledge to
  advance pain and palliative care globally

• International Pain and Policy Fellows: 15 healthcare
  professionals learn drug policy expertise to
  improve access to palliative care medicines in
  resource limited countries
Education in Palliative and End-of-Life Care
               in Oncology (EPEC-O)
                                            EPEC-O Content:

                                            Whole Patient Assessment                         13 Symptoms, including
                                            Communicating Effectively                              Pain
                                            Goals of Care                                          Nausea / vomiting
                                                                                                    Constipation
                                            Withholding withdrawing
                                                                                                    Bowel obstruction
                                            Clinical Trials
                                                                                                    Dyspnea
                                            Last Hours of Living
                                                                                                    Anorexia / cachexia
                                            Loss, Bereavement                                      Menopausal symptoms
                                            Survivorship                                           Pleural effusions
                                                                                                    Ascites
                                                                                                    Wounds



The EPEC Project of Northwestern University's Feinberg School of Medicine was created with the support of the American
Medical Association and the Robert Wood Johnson Foundation, with continued support from the National Cancer Institute
(R25 CA100754). The EPEC-O curriculum is produced by the EPEC Project with major funding provided by the National
Cancer Institute, with supplemental funding provided by the Lance Armstrong Foundation.
New Global Initiatives in Pain
    and Palliative Care
           End of Life Nursing Education
             Program - ELNEC - educates
             nurses globally in pain and
             palliative care
           Has detailed curriculum with
             translations into 15 languages


        (http://www.aacn.nche.edu/elnec)
International Palliative Care Resource Center
         URL Will Be www.IPCRC.net

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Dr kathleen foley presn to can pain summit 042412

  • 1. International Initiatives in Cancer Pain Kathleen M. Foley, MD April 24, 2012
  • 2. New Global Initiatives in Pain and Palliative Care • IASP Montreal Declaration on pain relief as a fundamental human right • A World Medical Association Declaration on access to pain relief • Human Rights Watch reports on access to pain relief and palliative care -India -Kenya -Ukraine
  • 3. New Global Initiatives in Pain Palliative Care • World Medical Association calls for pain and palliative care services within the right to health framework and supports their integration as human rights issues http://www.wma.ne
  • 4. New Global Initiatives in Pain and Palliative Care • Four Human Rights Watch Country Reports describe the human rights abuses related to lack of access to pain relieving drugs in: India Kenya Ukraine http://www.hrw.org/
  • 5. “Please , do not make us suffer anymore…….” Access to Pain Treatment as a Human Right In this 47-page report Human Rights Watch said that countries could significantly improve access to pain medications by addressing the causes of their poor availability. These often include the failure to put in place functioning supply and distribution systems; absence of government policies to ensure their availability; insufficient instruction for healthcare workers; excessively strict drug-control regulations; and fear of legal sanctions among healthcare workers. http://www.hrw.org/en/reports/2009/03/02/please-do-not-make-us-suffer-any-more
  • 8. Uncontrolled Pain Ukraine’s Obligation to Ensure Evidence- Based Palliative Care http://www.hrw.org/reports/2011/05/12/uncontrolled-pain
  • 9. People with debilitating 50 Milligrams is Not Enough illnesses are left to die in excruciating pain as a result of restrictions on pain medicines. Health care workers must be allowed to provide patients with relief from severe pain Vlad is suffering from incurable brain cancer. Despite his chronic pain, doctors in Ukraine are only allowed to prescribe 50 mg of pain medicine. In another country, doctors would typically prescribe more than 2,000 mg for a patient like Vlad. http://www.stoptortureinhealthcare.org/
  • 10. New Global Initiatives in Pain and Palliative Care • The International Association of Hospice and Palliative Care has: • Developed an essential drug list for palliative care medications • Consists of 34 medications, 14 currently on the WHO Essential Drug List http://iahpcnews.com/
  • 11. New Global Initiatives in Pain and Palliative Care • WHO Essential Drug Program has created an office for addressing Access to Controlled Substances as essential medicines • Appointed Willem Scholten as program director • Has developed a strategic plan with NGO partnerships including the ATOME project
  • 12. WHO Access to Essential Medicines Program for Controlled Substances • To improve access for opioid drugs in low and medium resource countries • Published two recent documents: • “Guidelines for Persistent Pain in Children” “Ensuring Balance in National Policies on Controlled Substances”
  • 13. New Global Initiatives in Pain and Palliative Care • UN General Assembly Meeting on Non- Communicable Diseases: • Calls for the integration of pain and palliative care into health care services
  • 14. New Global Initiatives in Pain and Palliative Care • New WHO Collaborating Centers in Palliative Care have been recognized: Barcelona, Spain Kerala, India and Trivandrum, India Kings’ College, London Sir Michael Sobell House, Oxford Pain and Policy Studies Program, the University of Wisconsin,USA
  • 15. New Global Initiatives in Palliative Care • Lien Foundation: Life Before Death initiative www. lifebeforedeath.com • TREAT THE PAIN Campaign http://www.treatthepain.com/ • OSF Campaign: Stop Torture in Healthcare http://stoptortureinhealthcare.org/
  • 16. Global Access to Pain Relief Initiative (GAPRI) • Supported by International Union Against Cancer (UICC) -global advocacy initiative -raise awareness for policy change -focus on cancer patients (http://www.uicc.org)
  • 17. GAPRI Strategy Intl policy Suppliers GAPRI Pain Treatment GAPRI Supplier Advocacy Project Network Multi-country global health programs GAPRI Envoy National policies and programs Program GAPRI Facilities Fellowship Program
  • 18. New Global Initiatives in Pain and Palliative Care • OSF IPCI Leadership Development Initiative: supports 44 leaders in palliative care from resource limited countries to develop skills and knowledge to advance pain and palliative care globally • International Pain and Policy Fellows: 15 healthcare professionals learn drug policy expertise to improve access to palliative care medicines in resource limited countries
  • 19. Education in Palliative and End-of-Life Care in Oncology (EPEC-O) EPEC-O Content:  Whole Patient Assessment 13 Symptoms, including  Communicating Effectively  Pain  Goals of Care  Nausea / vomiting  Constipation  Withholding withdrawing  Bowel obstruction  Clinical Trials  Dyspnea  Last Hours of Living  Anorexia / cachexia  Loss, Bereavement  Menopausal symptoms  Survivorship  Pleural effusions  Ascites  Wounds The EPEC Project of Northwestern University's Feinberg School of Medicine was created with the support of the American Medical Association and the Robert Wood Johnson Foundation, with continued support from the National Cancer Institute (R25 CA100754). The EPEC-O curriculum is produced by the EPEC Project with major funding provided by the National Cancer Institute, with supplemental funding provided by the Lance Armstrong Foundation.
  • 20. New Global Initiatives in Pain and Palliative Care End of Life Nursing Education Program - ELNEC - educates nurses globally in pain and palliative care Has detailed curriculum with translations into 15 languages (http://www.aacn.nche.edu/elnec)
  • 21. International Palliative Care Resource Center URL Will Be www.IPCRC.net