The slides that Helen Bevan presented at the People's Transformathon, 28th November 2016 #copro16 http://theedge.nhsiq.nhs.uk/peoplestransformathon/

1. Lone wolves, mobilisers and organisers:
learning from civic activists
Helen Bevan
@HelenBevan

2. @HelenBevan #CoPro2016
“Tomorrow’s management systems will
need to value diversity, dissent and
divergence as highly as conformance,
consensus and cohesion.”
Gary Hamel
Image by neilperkin.typepad.com
is the new normal!

3. Which kind
of activists
are most
successful at
delivering
change?

4. @HelenBevan #CoPro2016
Which kind of activists are most successful at
delivering change?
Lone wolves
Build power by expertise and information — through
advocacy, oversight, contributing to committees, public
comments and other forms of consultation
Source: Hahrie Han How Organizations Develop Activists: Civic Associations and Leadership in the 21st Century

5. @HelenBevan #CoPro2016
Patient leaders as “lone wolves”
“What I am ranting about is the way in which patients are
being streamed into advisory sub committees, the way we are
being used as tokens and to help tick off the right box…..
Where is the attitude that patients are part of the team in
healthcare, that we are partners? Why are we always asked
to participate inside a pre-determined frame? When will we
see co-design of new policies, and ultimately co-production?”
Annette McKinnon

6. @HelenBevan #CoPro2016
Which kind of activists are most successful at
delivering change?
Lone wolves
Build power by expertise and information — through
advocacy, oversight, contributing to committees, public
comments and other forms of consultation
Mobilisers
Build power by mobilising people – being able to call
on large numbers of people to contribute, engage in
change and take action
Source: Hahrie Han How Organizations Develop Activists: Civic Associations and Leadership in the 21st Century

7. @HelenBevan #CoPro2016
Which kind of activists are most successful at
delivering change?
Lone wolves
Build power by expertise and information — through
advocacy, oversight, contributing to committees, public
comments and other forms of consultation
Mobilisers
Build power by mobilising people – being able to call
on large numbers of people to contribute, engage in
change and take action
Organisers
Build power by growing leaders – identifying, recruiting
and training future leaders in a distributed network:
building a community and protecting its strength
Source: Hahrie Han How Organizations Develop Activists: Civic Associations and Leadership in the 21st Century

8. @HelenBevan #CoPro2016
Which kind of activists are most successful at
delivering change?
Lone wolves
Build power by expertise and information — through
advocacy, oversight, contributing to committees, public
comments and other forms of consultation
Mobilisers
Build power by mobilising people – being able to call
on large numbers of people to contribute, engage in
change and take action
Organisers
Build power by growing leaders – identifying, recruiting
and training future leaders in a distributed network:
building a community and protecting its strength
Source: Hahrie Han How Organizations Develop Activists: Civic Associations and Leadership in the 21st Century

9. @HelenBevan #CoPro2016
Which kind of activists are most successful at
delivering change?
Lone wolves
Build power by expertise and information — through
advocacy, oversight, contributing to committees, public
comments and other forms of consultation
Mobilisers
Build power by mobilising people – being able to call
on large numbers of people to contribute, engage in
change and take action
Organisers
Build power by growing leaders – identifying, recruiting
and training future leaders in a distributed network:
building a community and protecting its strength
Source: Hahrie Han How Organizations Develop Activists: Civic Associations and Leadership in the 21st Century

11. @HelenBevan #CoPro2016
Focus on the “We”
“Great social movements get their
energy by growing a distributed
leadership”
Joe Simpson

12. @HelenBevan #CoPro2016
Research shows that diverse groups of
people consistently make better
decisions than small groups of “experts”

13. @HelenBevan #CoPro2016
Here Come The Patientistas!
Now we need ‘inreach’ – we need to be like an octopus and
reach into the systems and the organisational structures and
change them. Ironically, the citadels of power are desperate
to change. Healthcare professionals are beginning to reach
out to work with us – can see that we can reframe problems,
bring different solutions, change dynamics, etc…….
We don’t need permission. We are everywhere, working in
diverse ways. But we have to step up and talk properly about
power
David Gilbert

14. @HelenBevan #CoPro2016
Building AGENCY in health & healthcare
Agency is about the patient being the
"agent" (or person with the active role)
When patients have agency, they are
making, creating, doing, sharing,
collaborating
Individual agency
versus
Collective agency

15. Copyright: <a href='http://www.123rf.com/profile_iqoncept'>iqoncept / 123RF Stock Photo</a>
Beyond top down and
bottom up change…….
Beyond the service lens
through which systems
leaders typically conceive
the problems we’re trying
to solve….
Bringing positive
disruption into the system
for faster change & bigger
outcomes
Disruptive co-creation
Adapted from SOLACE

16. @HelenBevan #CoPro2016
References
Helen Bevan: What I learnt about disruptive co-creation of the
health and care system at Stanford Medicine X
https://www.linkedin.com/pulse/what-i-learnt-disruptive-co-
production-health-care-system-helen-bevan
David Gilbert: Let’s talk about power – here come the
patientistas https://futurepatientblog.com/2016/10/19/lets-
talk-about-power-here-come-the-patientistas/
Annette McKinnon: The authentic patient voice
http://yourgoldwatch.blogspot.ca/2015/08/the-authentic-
patient-voice.html
Nesta: Health as a social movement
http://www.nesta.org.uk/sites/default/files/health_as_a_social
_movement-sept.pdf