Thing 9 - Licensing data for Reuse Thing 10 - Sharing Sensitive Data

1. 23 Research Data
Things
Research Data Coordinator
Katina Toufexis

2. Licensing data for reuse
Consider this scenario:
You’ve found a dataset you (or your client) are interested in.
You’ve downloaded it.
Excellent!
But do you know what you (or your client) can and cannot do with the data?
The answer lies in data licensing. Licensing is critical to enabling data to be
reused and cited.
Thing 9

3. Thing 9
https://www.youtube.c
om/watch?v=SHR1EJ
0kQ3g
Dr Ross Wilkinson,
Executive Director of
ANDS
Licensing data for reuse

4. Thing 9
AusGOAL (Australian Governments Open Access and Licensing Framework) is:
• An open access and licensing framework based on the international suite of
Creative Commons licences.
• Designed to help select the least restrictive licence to apply to published
datasets and other works
• A common approach to data licensing across research and government.
• Recommended licensing system for data publishing for ANDS partners. See
AusGOAL - ANDS Guide.
• Research data licensing FAQs.
Licensing data for reuse

5. Thing 9
Licensing data for reuse
RDM Toolkit
http://guides.is.
uwa.edu.au/c.
php?g=325196
&p=2633029

6. Thing 9
Summary of
permissions
given by CC
licenses
Note:
AusGOAL also
offers a
restrictive
license option.
Licensing data for reuse

7. Thing 9
Software licences
• AusGOAL provides guidance on software licensing, and recommends BSD 3
Clause Licence as its most preferred open source software license. See
AusGOAL software licensing
Licensing data for reuse

8. Thing 9
FAQs
http://www.ausgoal.gov.au
/research-data-faqs
Licensing data for reuse

9. Thing 9
Meetup
Licensing data for reuse

10. Thing 9
Meetup
Licensing data for reuse

11. Thing 9
ANDS Webinars
Dr Kevin Cullen UNSW Diane Peters, Dr Matthew Todd
General Counsel for
Creative Commons
Licensing data for reuse

12. Thing 9
Easy Access IP
- Dr. Kevin Cullen
UNSW
Licensing data for reuse

13. Thing 9
Australian Government Public Data Policy Statement
Licensing data for reuse

14. Thing 9
Licensing data for reuse

15. Thing 10
Sharing Sensitive Data
Two major categories of sensitive data are:
Human data (eg health and personal data, secret or sacred practices); or
Ecological data (may place vulnerable species at risk).
Given the nature of this type of data, you might expect that it can’t be shared
and reused. But in many cases, it can be.

16. Thing 10
Sharing Sensitive Data
One example where sensitive data is shared in RDA:
Pregnancy and Lifestyle dataset

17. Thing 10
Sharing Sensitive Data
Another example where
sensitive data is shared in RDA:
1. Australian Longitudinal Study
on Women's Health

18. Thing 10
Sharing Sensitive Data
How do you share sensitive data?
1. De-identify datasets
2. Publish a description (metadata only)
3. This video…

19. Thing 10
Sharing Sensitive Data
A risky business... or is it? The benefits of publishing sensitive data in a
snapshot - Prof Michael Martin (ANU) talks about risk versus benefit of
sharing sensitive data

20. Thing 10
Sharing Sensitive Data
ANDS Guide to publishing and sharing sensitive data
Outlines best practice for the publication and sharing of sensitive research
data in the Australian context.
• confidentialising your human and sensitive ecological data
• what's legal
• what to include in a consent form requesting data publication and sharing
• sharing sensitive data that you did not collect
• making data discoverable: metadata
• conditional access to data: what is it; how do I do it?
• licensing your data
• depositing your data
• a comprehensive guide on most things you need to know about publishing
sensitive data.

21. Thing 10
Sharing Sensitive Data

22. Thing 10
Sharing Sensitive Data
Funders
Responsible sharing of sensitive data is required or encouraged by peak bodies
and leading publishers in human research. Check out:
• Section 3.2.2 of the NHMRC National Statement on Ethical Conduct in Human
Research.
• ARC Discovery Program Funding Rules - applicants must now outline plans
for the storage, access and reuse of data.
• Wellcome Trust joint statement on data sharing - to which NHMRC is a
signatory.
Publishers
• PLOS journals policy on making all data available.
• Nature publishing group journals require supporting data to be available to
editors and reviewers at the time of submission, preferrably via public
repositories.
Guidance from Funders and Publishers

23. Thing 10
Sharing Sensitive Data
Imagine you are either a researcher or a participant in a health data
survey:
Participant: what questions might you first ask the researcher about
intended sharing and reuse of the survey data?
Researcher: What responses would you need to prepare to anticipate
participants questions about publishing “their data for all the world to see”?

24. Thing 10
Sharing Sensitive Data
How we manage sensitive data through its lifecycle?
Who has a role in ensuring sensitive data is appropriately managed and
shared?
These are critical issues in ensuring sensitive data can be shared.

25. Thing 10
Sharing Sensitive Data
Guidelines for the Ethical Use of Digital
Data in Human Research
(produced by Melbourne University and
the Carlton Connect Initiative).

26. Thing 10
Sharing Sensitive Data
The UK Anonymisation Network (UKAN) has developed a one hour online
course based on the Anonymisation Decision-making Framework.
You don’t need any previous experience in data analysis to do the course.
http://theodi.github.io
/ukan-course/#0.1

27. Contacts
Contact UWA 23 Things Coordinators:
Caroline Clark
caroline.clark@uwa.edu.au
Nola Steiner
nola.steiner@uwa.edu.au
Katina Toufexis
katina.toufexis@uwa.edu.au