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PM5: Social media for trustees 
#TRUSTEECONF2014 
Vicky Browning, Charity Comms 
Zoe Amar, Director, Zoe Amar 
Communications 
Deborah Alsina, Bowel Cancer UK
10 Cs of social media 
* CharityComms 
* A confession 
* Some cursing 
* A caveat 
* A caution 
* A chart 
* Some cats 
* Some comfort 
* A challenge 
* Collateral
About CharityComms 
Our vision 
Our vision is for effective and inspiring 
communications to be at the heart of 
every charity’s work for a better world. 
Our purpose 
We improve the standard of 
communications and champion its role 
in the sector. We represent, support, 
inspire, connect and inform our 
members and the wider charity 
communications community.
A confession 
I am a social media curmudgeon
Some cursing
“It reminds me of a stinky old pub. In the corner 
would be this slightly disgusting old man who sits 
there all day, every day. If you went up and talked 
to him, you’d get the kind of grumpy, horrible, 
moldy, old meaningless crap that you read on 
Twitter.” 
Helen Mirren
A caveat 
Social media matters – get over it
A caution 
Social media is (just) another communications 
channel: normal rules apply 
* What do you want to get out of it? 
* Who are you talking to? 
* What do you want to achieve? 
* How much time can you give?
A chart: the social media landscape
What the different social media channels are for
Some comfort 
It’s not as scary as you might think
A challenge 
Do some homework, take a deep breath and 
have a go
Collateral 
CharityComms’ Guide to Social Media for Charities 
charitycomms.org.uk; Techs, thugs and %*&$ing trolls 
CharityComms’ peer support scheme 
@CharityComms
Thanks for having me 
Vicky Browning 
Director, CharityComms 
charitycomms.org.uk 
@browning_vicky
Why is this important? 
• Almost half the boards of the UK’s largest public companies have 
not discussed their social media strategies in the past 12 months 
• Only 7 per cent have discussed it four times or more in that 
period 
• As many as one in three says that social media strategy is 
unimportant to the board, against only about one in four saying it 
is important. 
#TRUSTEECONF2014
Is your board ready for the next #icebucketchallenge? 
Why is this important? 
• Almost half the boards of the UK’s largest public companies have 
not discussed their social media strategies in the past 12 months. 
• And only 7 per cent have discussed it four times or more in that 
period 
• As many as one in three says that social media strategy is 
unimportant to the board, against only about one in four saying it 
is important. 
#TRUSTEECONF2014
Is your board ready for a social media crisis? 
• Almost half the boards of the UK’s largest public companies have 
not discussed their social media strategies in the past 12 months. 
• And only 7 per cent hve discussed it four times or more in that 
period 
• As many as one in three says that social media strategy is 
unimportant to the board, against only about one in four saying it 
is important. 
#TRUSTEECONF2014
• Almost half the boards of the UK’s largest public companies have 
not discussed their social media strategies in the past 12 months. 
• And only 7 per cent hve discussed it four times or more in that 
period 
• As many as one in three says that social media strategy is 
unimportant to the board, against only about one in four saying it 
is important. 
#TRUSTEECONF2014 
Isn’t my CEO on Twitter? 
Last year a Weber Shandwick 
study predicted a 50% increase 
in CEOs on social media by 
2018
What about transparency and social media? 
• Almost half in the past 12How can tyristees us months. 
• And only 7 per cent have discussed it four times or more in that 
period 
• As many as one in three says that social media strategy is 
unimportant to the board, against only about one in four saying it 
is important. 
#TRUSTEECONF2014
5 challenges for charity trustees- and how social 
• Almost half in the past 12How can tyristees us months. 
• And only 7 per cent have discussed it four times or more in that 
period 
• As many as one in three says that social media strategy is 
unimportant to the board, against only about one in four saying it 
is important. 
#TRUSTEECONF2014 
media can solve them
Challenge no 1. “How can our board communicate 
• Almost half in the past 12How can tyristees us months. 
• And only 7 per cent have discussed it four times or more in that 
period 
• As many as one in three says that social media strategy is 
unimportant to the board, against only about one in four saying it 
is important. 
#TRUSTEECONF2014 
better?”
Challenge no 2. “How can we keep our board up to 
• Almost half in the past 12How can tyristees us months. 
• And only 7 per cent have discussed it four times or more in that 
period 
• As many as one in three says that social media strategy is 
unimportant to the board, against only about one in four saying it 
is important. 
#TRUSTEECONF2014 
speed?”
Challenge no 3. “How can trustees help promote my 
• Almost half in the past 12How can tyristees us months. 
• And only 7 per cent have discussed it four times or more in that 
period 
• As many as one in three says that social media strategy is 
unimportant to the board, against only about one in four saying it 
is important. 
#TRUSTEECONF2014 
charity?”
Challenge no 4. “How can I make the most of my 
• Almost half in the past 12How can tyristees us months. 
• And only 7 per cent have discussed it four times or more in that 
period 
• As many as one in three says that social media strategy is 
unimportant to the board, against only about one in four saying it 
is important. 
#TRUSTEECONF2014 
board’s contacts?
Challenge no 5. “How can we recruit more diverse 
• Almost half in the past 12How can tyristees us months. 
• And only 7 per cent have discussed it four times or more in that 
period 
• As many as one in three says that social media strategy is 
unimportant to the board, against only about one in four saying it 
is important. 
#TRUSTEECONF2014 
trustees?”
• Almost half in the past 12How can tyristees us months. 
• And only 7 per cent have discussed it four times or more in that 
period 
• As many as one in three says that social media strategy is 
unimportant to the board, against only about one in four saying it 
is important. 
#TRUSTEECONF2014
NCVO/BWB Trustee Conference 
#TRUSTEECONF2014 
2014 
PM5: Social media for trustees 
@deborahalsina 
@Bowel_Cancer_UK
What I’ve learned and what I gain from 
using social media 
- Introduction to bowel cancer in the UK & Bowel 
Cancer UK 
- How I started Charity – what I’ve of got right/the wrong 
Year 
- What I / the charity/ bowel cancer patients gain 
- What you as Trustees 2013/could gain 
2014 
- Some examples of positive outcomes due to social 
media
Incidence 
1,156 people per year 
Mortality 
403 people per year 
Charity of the Year 
2013/2014 
Incidence 
2,354 people per year 
Mortality 
899 people per year 
Incidence 
3,967 people per year 
Mortality 
1,501 people per year 
Incidence 
33,218 people per year 
Mortality 
12,905 people per year 
Bowel Cancer / UK
Using Social Media 
Why? 
- To explore ways of communicating about the 
Charity of the Year 
2013/2014 
disease 
- To understand social media & its value 
- Because I was pushed! 
What? 
•Twitter 
•LinkedIn 
•Blogs (deborahalsinablog.com)
Starting out: conflicting advice 
• Succinct policy tweets only 
• Engage in conversation 
• Share information 
• Separate your work twitter personality from 
Charity of the Year 
your personal self 
2013/2014 
• Be yourself - ensure you are authentic 
• RESULT: STRESS!
Moving forward: 
Defining my target audience 
• Those closely affected by the disease 
• Supporters of Bowel Cancer UK 
• People interested in bowel cancer (including health 
Charity of the Year 
policy experts and clinicians) 
2013/2014 
(Secondary: other charity professionals) 
Also follow: 
• News sources
What do I gain from twitter? 
Charity of the Year 
2013/2014 
Insight & 
motivation
Why does it matter
Neil 
“The whole journey of losing a partner and best friend 
is very odd. At first the shock protects you a little. 
Then you throw yourself into work with unbelievable 
mania just to avoid thinking about it. 
Charity of the Year 
Only now 10 months on has reality kicked in. The 
2013/2014 
loneliness is awful, the sense of there being no purpose 
to anything any more is high 
I am sure this is all part of the process but it is such a 
painful part”
Shared experience 
Aims to: 
Charity of the Year 
2013/2014
Charity of the Year 
2013/2014 
What else? 
• Immediate reaction 
& consultation 
• Ideas 
• Health policy abridged 
• News in a flash 
• Networking - even 
gained a skydive 
partner
What does the charity gain? 
• Supporters, media case studies, volunteers 
• Amplify key messages & promote 
Charity of the Year 
2013/2014 
engagement 
• A human ‘face’ rather than simply a logo 
“Definitely a positive thing gives the charity a human face & 
instant contact when people are most in need” Karen 
“Reason I got involved” Rachel 
`Makes me feel much more connected to the charity and wanting 
to help you change things` Charlotte
Any value for patients? 
`having bowel cancer or knowing someone that does can be a 
lonely place, even now it is comforting. Keep up the fantastic 
work!` Simon 
Charity of the Year 
`Patients are often in a desperate situation and you have buckets 
of compassion and a huge desire to change things, which comes 
across.. Is very positive effect for Bowel Cancer UK` Paul 
2013/2014 
`Dawn and I really appreciated your kindness and support in our 
darkest hour` Dave
Social media: any value for 
Trustees? 
 Insight into the issues 
 Insight into charity’s working context and key 
Charity of the Year 
2013/2014 
stakeholders 
 Understand how the charity /CEO is engaging 
publically & how it is received 
 Understand key messages/campaigns 
 Keep up to date 
 Opportunity to amplify key messages and take to 
your audiences/connections
When it works 
Charity of the Year 
2013/2014
#Never2Young 
Charity of the Year 
2013/2014
#Never2Young: launch month 
55 case studies 
Campaign films – nearly 4000 plays 
164 radio and TV interviews, 
39 pieces of national and local press, 
Substantial online press coverage 
#Never2Young – used in 2,651 tweets, reaching 
c.141,351 people 
Website visits – Up 
Helpline calls - up 
Charity of the Year 
2013/2014 
(Fundraising campaign: £100K++ new income)
Charity of the Year 
2013/2014
What does Twitter give 
Charity of the Year 
2013/2014
Charity of the Year 
2013/2014 
Katie 
“Cancer has taken everything away from me 
and I hate it. I hate that it’s making me 
bitter and emotional, I hate that it’s given 
me no hope, I hate that it’s made me weak 
and dependant on people and, most of all, I 
hate that it’s going to take me away from 
my kids and family.”
This Morning 
Charity of the Year 
2013/2014
• In summary 
• Highly recommend engaging in twitter 
• Be yourself 
• Define your audience & how that helps your charity 
meet its mission 
Charity of the Year 
• Integrate it into your marketing & communications 
2013/2014 
strategy. 
• Be clear about your twitter feed versus the 
corporate account/CEO 
• Don’t just broadcast, talk to people 
• Don’t let it stress you out!
I can’t wait to: 
... wake up and not have cancer as my first thought 
... be able to dye my hair! 
... get all dressed up and dance all night 
... feel like … have the Charity 'me' again 
energy to be of a better the Mummy 
Year 
… be able to wash my hair and the bath tub 
2013/2014 
not see loads of it in 
… watch my beautiful little girl grow up 
... experience my healthy and exciting future 
Charlotte
Thank you 
Charity of the Year 
Deborah Alsina 
Chief Executive 
2013/2014 
Deborah.alsina@bowelcanceruk.org.uk 
020 7940 1768 
@deborahalsina
NCVO/BWB Trustee 
Conference 2014 
Developing exceptional 
governance 
#TRUSTEECONF2014

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Social media for trustees

  • 1. PM5: Social media for trustees #TRUSTEECONF2014 Vicky Browning, Charity Comms Zoe Amar, Director, Zoe Amar Communications Deborah Alsina, Bowel Cancer UK
  • 2. 10 Cs of social media * CharityComms * A confession * Some cursing * A caveat * A caution * A chart * Some cats * Some comfort * A challenge * Collateral
  • 3. About CharityComms Our vision Our vision is for effective and inspiring communications to be at the heart of every charity’s work for a better world. Our purpose We improve the standard of communications and champion its role in the sector. We represent, support, inspire, connect and inform our members and the wider charity communications community.
  • 4. A confession I am a social media curmudgeon
  • 6. “It reminds me of a stinky old pub. In the corner would be this slightly disgusting old man who sits there all day, every day. If you went up and talked to him, you’d get the kind of grumpy, horrible, moldy, old meaningless crap that you read on Twitter.” Helen Mirren
  • 7. A caveat Social media matters – get over it
  • 8. A caution Social media is (just) another communications channel: normal rules apply * What do you want to get out of it? * Who are you talking to? * What do you want to achieve? * How much time can you give?
  • 9. A chart: the social media landscape
  • 10. What the different social media channels are for
  • 11. Some comfort It’s not as scary as you might think
  • 12. A challenge Do some homework, take a deep breath and have a go
  • 13. Collateral CharityComms’ Guide to Social Media for Charities charitycomms.org.uk; Techs, thugs and %*&$ing trolls CharityComms’ peer support scheme @CharityComms
  • 14. Thanks for having me Vicky Browning Director, CharityComms charitycomms.org.uk @browning_vicky
  • 15. Why is this important? • Almost half the boards of the UK’s largest public companies have not discussed their social media strategies in the past 12 months • Only 7 per cent have discussed it four times or more in that period • As many as one in three says that social media strategy is unimportant to the board, against only about one in four saying it is important. #TRUSTEECONF2014
  • 16. Is your board ready for the next #icebucketchallenge? Why is this important? • Almost half the boards of the UK’s largest public companies have not discussed their social media strategies in the past 12 months. • And only 7 per cent have discussed it four times or more in that period • As many as one in three says that social media strategy is unimportant to the board, against only about one in four saying it is important. #TRUSTEECONF2014
  • 17. Is your board ready for a social media crisis? • Almost half the boards of the UK’s largest public companies have not discussed their social media strategies in the past 12 months. • And only 7 per cent hve discussed it four times or more in that period • As many as one in three says that social media strategy is unimportant to the board, against only about one in four saying it is important. #TRUSTEECONF2014
  • 18. • Almost half the boards of the UK’s largest public companies have not discussed their social media strategies in the past 12 months. • And only 7 per cent hve discussed it four times or more in that period • As many as one in three says that social media strategy is unimportant to the board, against only about one in four saying it is important. #TRUSTEECONF2014 Isn’t my CEO on Twitter? Last year a Weber Shandwick study predicted a 50% increase in CEOs on social media by 2018
  • 19. What about transparency and social media? • Almost half in the past 12How can tyristees us months. • And only 7 per cent have discussed it four times or more in that period • As many as one in three says that social media strategy is unimportant to the board, against only about one in four saying it is important. #TRUSTEECONF2014
  • 20. 5 challenges for charity trustees- and how social • Almost half in the past 12How can tyristees us months. • And only 7 per cent have discussed it four times or more in that period • As many as one in three says that social media strategy is unimportant to the board, against only about one in four saying it is important. #TRUSTEECONF2014 media can solve them
  • 21. Challenge no 1. “How can our board communicate • Almost half in the past 12How can tyristees us months. • And only 7 per cent have discussed it four times or more in that period • As many as one in three says that social media strategy is unimportant to the board, against only about one in four saying it is important. #TRUSTEECONF2014 better?”
  • 22. Challenge no 2. “How can we keep our board up to • Almost half in the past 12How can tyristees us months. • And only 7 per cent have discussed it four times or more in that period • As many as one in three says that social media strategy is unimportant to the board, against only about one in four saying it is important. #TRUSTEECONF2014 speed?”
  • 23. Challenge no 3. “How can trustees help promote my • Almost half in the past 12How can tyristees us months. • And only 7 per cent have discussed it four times or more in that period • As many as one in three says that social media strategy is unimportant to the board, against only about one in four saying it is important. #TRUSTEECONF2014 charity?”
  • 24. Challenge no 4. “How can I make the most of my • Almost half in the past 12How can tyristees us months. • And only 7 per cent have discussed it four times or more in that period • As many as one in three says that social media strategy is unimportant to the board, against only about one in four saying it is important. #TRUSTEECONF2014 board’s contacts?
  • 25. Challenge no 5. “How can we recruit more diverse • Almost half in the past 12How can tyristees us months. • And only 7 per cent have discussed it four times or more in that period • As many as one in three says that social media strategy is unimportant to the board, against only about one in four saying it is important. #TRUSTEECONF2014 trustees?”
  • 26. • Almost half in the past 12How can tyristees us months. • And only 7 per cent have discussed it four times or more in that period • As many as one in three says that social media strategy is unimportant to the board, against only about one in four saying it is important. #TRUSTEECONF2014
  • 27. NCVO/BWB Trustee Conference #TRUSTEECONF2014 2014 PM5: Social media for trustees @deborahalsina @Bowel_Cancer_UK
  • 28. What I’ve learned and what I gain from using social media - Introduction to bowel cancer in the UK & Bowel Cancer UK - How I started Charity – what I’ve of got right/the wrong Year - What I / the charity/ bowel cancer patients gain - What you as Trustees 2013/could gain 2014 - Some examples of positive outcomes due to social media
  • 29. Incidence 1,156 people per year Mortality 403 people per year Charity of the Year 2013/2014 Incidence 2,354 people per year Mortality 899 people per year Incidence 3,967 people per year Mortality 1,501 people per year Incidence 33,218 people per year Mortality 12,905 people per year Bowel Cancer / UK
  • 30. Using Social Media Why? - To explore ways of communicating about the Charity of the Year 2013/2014 disease - To understand social media & its value - Because I was pushed! What? •Twitter •LinkedIn •Blogs (deborahalsinablog.com)
  • 31. Starting out: conflicting advice • Succinct policy tweets only • Engage in conversation • Share information • Separate your work twitter personality from Charity of the Year your personal self 2013/2014 • Be yourself - ensure you are authentic • RESULT: STRESS!
  • 32. Moving forward: Defining my target audience • Those closely affected by the disease • Supporters of Bowel Cancer UK • People interested in bowel cancer (including health Charity of the Year policy experts and clinicians) 2013/2014 (Secondary: other charity professionals) Also follow: • News sources
  • 33. What do I gain from twitter? Charity of the Year 2013/2014 Insight & motivation
  • 34. Why does it matter
  • 35. Neil “The whole journey of losing a partner and best friend is very odd. At first the shock protects you a little. Then you throw yourself into work with unbelievable mania just to avoid thinking about it. Charity of the Year Only now 10 months on has reality kicked in. The 2013/2014 loneliness is awful, the sense of there being no purpose to anything any more is high I am sure this is all part of the process but it is such a painful part”
  • 36. Shared experience Aims to: Charity of the Year 2013/2014
  • 37. Charity of the Year 2013/2014 What else? • Immediate reaction & consultation • Ideas • Health policy abridged • News in a flash • Networking - even gained a skydive partner
  • 38. What does the charity gain? • Supporters, media case studies, volunteers • Amplify key messages & promote Charity of the Year 2013/2014 engagement • A human ‘face’ rather than simply a logo “Definitely a positive thing gives the charity a human face & instant contact when people are most in need” Karen “Reason I got involved” Rachel `Makes me feel much more connected to the charity and wanting to help you change things` Charlotte
  • 39. Any value for patients? `having bowel cancer or knowing someone that does can be a lonely place, even now it is comforting. Keep up the fantastic work!` Simon Charity of the Year `Patients are often in a desperate situation and you have buckets of compassion and a huge desire to change things, which comes across.. Is very positive effect for Bowel Cancer UK` Paul 2013/2014 `Dawn and I really appreciated your kindness and support in our darkest hour` Dave
  • 40. Social media: any value for Trustees?  Insight into the issues  Insight into charity’s working context and key Charity of the Year 2013/2014 stakeholders  Understand how the charity /CEO is engaging publically & how it is received  Understand key messages/campaigns  Keep up to date  Opportunity to amplify key messages and take to your audiences/connections
  • 41. When it works Charity of the Year 2013/2014
  • 42. #Never2Young Charity of the Year 2013/2014
  • 43. #Never2Young: launch month 55 case studies Campaign films – nearly 4000 plays 164 radio and TV interviews, 39 pieces of national and local press, Substantial online press coverage #Never2Young – used in 2,651 tweets, reaching c.141,351 people Website visits – Up Helpline calls - up Charity of the Year 2013/2014 (Fundraising campaign: £100K++ new income)
  • 44. Charity of the Year 2013/2014
  • 45. What does Twitter give Charity of the Year 2013/2014
  • 46. Charity of the Year 2013/2014 Katie “Cancer has taken everything away from me and I hate it. I hate that it’s making me bitter and emotional, I hate that it’s given me no hope, I hate that it’s made me weak and dependant on people and, most of all, I hate that it’s going to take me away from my kids and family.”
  • 47. This Morning Charity of the Year 2013/2014
  • 48. • In summary • Highly recommend engaging in twitter • Be yourself • Define your audience & how that helps your charity meet its mission Charity of the Year • Integrate it into your marketing & communications 2013/2014 strategy. • Be clear about your twitter feed versus the corporate account/CEO • Don’t just broadcast, talk to people • Don’t let it stress you out!
  • 49. I can’t wait to: ... wake up and not have cancer as my first thought ... be able to dye my hair! ... get all dressed up and dance all night ... feel like … have the Charity 'me' again energy to be of a better the Mummy Year … be able to wash my hair and the bath tub 2013/2014 not see loads of it in … watch my beautiful little girl grow up ... experience my healthy and exciting future Charlotte
  • 50. Thank you Charity of the Year Deborah Alsina Chief Executive 2013/2014 Deborah.alsina@bowelcanceruk.org.uk 020 7940 1768 @deborahalsina
  • 51. NCVO/BWB Trustee Conference 2014 Developing exceptional governance #TRUSTEECONF2014

Notas del editor

  1. As people arrive 9.30 – 10am
  2. As people arrive 9.30 – 10am
  3. So I took a deep breath and decided to re-think my engagement. I followed many other charities and individuals to learn from them and also considered what BCUK’s strengths and weaknesses were. At time we had less than 1000 followers and we didn’t do social media particularly well but then at the time we had one member of staff in comms. Our patient engagement was under-developed and I realised there were lots of supporters tweeting about us but we weren’t responding, so that’s where I decided to address. My focus is: Patients and carers Supporters Those interested in bowel cancer Since then its worked much better. I’m hardly remarkable at social media and my twitter feed is pretty dull I think but it seems to work for patients in particular.
  4. So how does that insight help? Well by understanding patients experience of diagnosis, treatment and care I can see trends and leit motif’s and we can translate those individual stories into powerful recommendations for change. I guess very personally I find talking to patients and their families incredibly moving and motivating. It drives me to try just that little bit harder to find the breakthrough we need to really save lives. After all bowel cancer is preventable, treatable and curable.
  5. Any questions?
  6. As people arrive 9.30 – 10am