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Authentic Value: Being Known in the e-Patient Community
1. Authentic Value: Being Known in e-Patient Communities “ e-Patient Dave” deBronkart @ePatientDave e-Patient Connections 2009 October 26, 2009
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3. Part 1: Participatory Medicine John Sharp, Cleveland Clinic: “ If you have not read the e-Patient White Paper, you do not understand the future of medicine.”
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10. What does Frishauf propose? Reputation systems. (Like Amazon and eBay. Per Esther Dyson’s Release 1.0, October 2003)
11. I said “Your time will come.” Mine did. Part 4: Personal Relevance
12. The Incidental Finding Routine shoulder x-ray, Jan. 2, 2007 “ Your shoulder will be fine … but there’s something in your lung” The shadow was a golf-ball size tumor: kidney cancer that had spread throughout the body
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14. After the shock you’re left with the question: What are my options? What can I do?
18. Please: 1% for the patients. Patient communities do a whole lot of good for a little bit of cash. They’re NOT free. Whatever we spend, let’s set aside just 1% to help patient communities help themselves.
19. E-Patient Activity 3: My own social support network (CaringBridge.org - family and friends - journal & guestbook)
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21. Think about this: How do you establish an influential role in these e-patient conversations?
33. 2.8 Years in Pictures… December 2006 – dying of cancer and didn’t know it October 2007 – office Halloween party September – the engaged patient becomes a first-time fundrider! my bone surgeon, and my leg with “make-up” May 2009 – with Mom at my daughter’s wedding