Empowered Patients Driving Their Health Data
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The document discusses issues around patient access to their own medical data from implanted devices and electronic health records. It notes that currently, patients' data is controlled more by device vendors and medical providers rather than the patients themselves. The document advocates for patients having more access and control over their own health data so they can be more empowered, engaged partners in managing their care. It cites a survey finding that most patients believe their health data belongs to them, though many doctors still support limited patient access to electronic health records.
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Empowered Patients Driving Their Health Data
- 1. Hugo Campos @hugooc ! ! ! ! ! Bon Secours October 25, 2013 The ePatient
- 2. “ ” Adrian Gropper, MD Health Informatics Entrepreneur, Developer and Consultant Implants are the most personal of personal devices. They should answer first to us, then to our doctors and finally, maybe, to a particular vendor in the cloud. Right now that sequence is reversed.
- 4. Syncope
- 6. Sudden Cardiac Arrest kills 350,000 people each year. Source: Heart Rhythm Society
- 7. Cuser JP, Connelly DT. Implantable defibrillators for life threatening ventricular arrhythmias. Are more effective than antiarrhythmic drugs in selected high risk patients [editorial]. BMJ 1998;317:762–3.
- 8. ICD
- 9. Data is not made available to the patient who originates it.
- 13. Industry: “It does not fit our business model.”
- 14. Data is too complex Generate anxiety Overwhelm clinics with calls Cut doctors out of the care circle
- 16. Patients have to engage in the co-production of health intelligence.
- 17. Activity $99
- 19. Weight $159
- 21. free
- 22. $30,000 No data.
- 27. • HR Variability • Arrhythmia logs • Device integrity
- 28. • Sleep patterns • Exercise • Nutrition • Mood
- 32. Whose data is it? “As a patient myself, I view the data on me as my data.” — Dr. Jeff Shuren, CDRH
- 37. Accenture Survey Believe patients should have full access to their EHR Believe patients should have limited access to their EHR Believe patients should have no access to their EHR 65% 4%31% Only a third of U.S. doctors think patients should have full access to their electronic health records. These findings were consistent among 3,700 doctors surveyed by Accenture in eight countries: Australia, Canada, England, France, Germany, Singapore, Spain and the United States.
- 40. Patient Portals
- 42. • Thank you • @hugooc