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Community Living Trust Therapy Team
  Jackie Napier & Liz English




   Challenging the Boundaries 2012
InnovatIve
 SolutIonS
Who We are    B


 Community Living Trust Therapy Services


 Jackie


 Liz
L




         termInology         L


 Patients: service users, clients, people we support,
  subjects, residents
 Helpers: Support people, paid workers, volunteers,
  family members, friends, nurses
 Leaders: therapists, educators, team leaders,
  managers, service co-ordinators
PatIent dIgnIty                                  J


 Patients are not just loads. They don’t have handles.
    They come in different shapes and sizes. They have
    feelings. They need to be handled safely, with care
    and dignity.

 Patient handling and quality of care are dependent on
    staff safety and competence.
   Quote from Section 2 Why Moving and Handling Programmes are Needed June 2011 Draft.
decISIon makerS             J




 Clients
 Families
 Organisations
 Policy –service providers
 Audits
rISkS
•Support person




•Client
Who IS the clIent?          J




 Person referred
 Person's family
 Paid support people – home and vocational
 Friends or anyone else who assists transfers
JugglIng
               PrIorItIeS
   Safety
   Independence
   Maintaining ability to stand
   Duty of care
   Dignity of risk
   Family/ethnic culture
   Dignity
   Level of understanding
   Right to work in a safe environment. A home becomes a
    work environment.
                 Who makes the decision?
BehavIoural
   ISSueS       L




        Communication
            Timing
           Motivation
           Medication
        Natural rhythms
  Hitting, biting, head banging
 Underlying issues for Behaviour
IdeaS
Peter
L

     Peter is very frail and unable to transfer on his own
     Lives in own home with family support
     Family do not want a hoist in the home
     Also has paid carer coming into his home
     He needs regular position changes




                   when the book don't work
                      challenging the boundaries 2012
Sam
J



    • Not walking
    • Was using standing hoist to remove pants and go to
      the toilet
    • No longer weight bearing effectively for standing
      hoist. Relying on extensor tone.
    • Full hoist now required, however cannot get pants
      down even in a hygiene sling
    • To use the full hoist requires clothing to be managed
      on the bed, this now involves many transfers to use
      the toilet
                  when the book don't work
                     challenging the boundaries 2012
mary-Jane
J

     Elderly woman with CP
     Very frail skin ‘tissue paper’
     Decreasing physical and cognitive ability
     Too unsafe for standing hoist, has had falls and staff
      want/need to use full hoist
     Mary-Jane very distressed about change




                   when the book don't work
                   challenging the boundaries 2012
Jack
L


     18 year old man with C.P.
     Significant I.D. + P.D. – no reliable communication
     Loss of ROM in all joints
     Low bone density “density of a 90 yr old”. #’s on
      movement. Currently #R patella #L humerus
     High pressure risk – currently ulcer on sacrum and
      gluteal crease
     Frequent seizures
     Lives with his mother. Goes to several places for
      respite care
                  when the book don't work
                  challenging the boundaries 2012
BIll
L




     Lives in residential service
     Varied level of ‘skill’ in the team
     “easy to lift”
     Refusal from team to use hoist and sling
     “hoist too hard, not enough space, takes too long”
     Staff’s right to choose to do this?



                    when the book don't work
                    challenging the boundaries 2012
rangI
J




    • Mobile but occasionally falls
    • Once on floor difficult to get up
    • There is no hoist – and does not meet funding criteria
     for one in the home




                   when the book don't work
                   challenging the boundaries 2012
hoW do you?
B
     Transfer from seat onto a prone wedge?
Assist a person into a
   swimming pool
  where there is no
     pool hoist?
Position
 someone in a
   contoured
seating system
 without lifting,
  bending and
    twisting?
IS there more to
conSIder aBout?......
 Physical closeness
 “Therapeutic handling”
 Essentials of life
 Dignity of risk
 Fitness of support person
 Gender considerations
 Cultural considerations
Solutions
 needed
“When the Book Don’t Work!”

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“When the Book Don’t Work!”

  • 1. Community Living Trust Therapy Team Jackie Napier & Liz English Challenging the Boundaries 2012
  • 3. Who We are B  Community Living Trust Therapy Services  Jackie  Liz
  • 4. L termInology L  Patients: service users, clients, people we support, subjects, residents  Helpers: Support people, paid workers, volunteers, family members, friends, nurses  Leaders: therapists, educators, team leaders, managers, service co-ordinators
  • 5. PatIent dIgnIty J  Patients are not just loads. They don’t have handles. They come in different shapes and sizes. They have feelings. They need to be handled safely, with care and dignity.  Patient handling and quality of care are dependent on staff safety and competence.  Quote from Section 2 Why Moving and Handling Programmes are Needed June 2011 Draft.
  • 6. decISIon makerS J  Clients  Families  Organisations  Policy –service providers  Audits
  • 8. Who IS the clIent? J  Person referred  Person's family  Paid support people – home and vocational  Friends or anyone else who assists transfers
  • 9. JugglIng PrIorItIeS  Safety  Independence  Maintaining ability to stand  Duty of care  Dignity of risk  Family/ethnic culture  Dignity  Level of understanding  Right to work in a safe environment. A home becomes a work environment. Who makes the decision?
  • 10. BehavIoural ISSueS L  Communication  Timing  Motivation  Medication  Natural rhythms  Hitting, biting, head banging  Underlying issues for Behaviour
  • 11. IdeaS
  • 12. Peter L  Peter is very frail and unable to transfer on his own  Lives in own home with family support  Family do not want a hoist in the home  Also has paid carer coming into his home  He needs regular position changes when the book don't work challenging the boundaries 2012
  • 13. Sam J • Not walking • Was using standing hoist to remove pants and go to the toilet • No longer weight bearing effectively for standing hoist. Relying on extensor tone. • Full hoist now required, however cannot get pants down even in a hygiene sling • To use the full hoist requires clothing to be managed on the bed, this now involves many transfers to use the toilet when the book don't work challenging the boundaries 2012
  • 14. mary-Jane J  Elderly woman with CP  Very frail skin ‘tissue paper’  Decreasing physical and cognitive ability  Too unsafe for standing hoist, has had falls and staff want/need to use full hoist  Mary-Jane very distressed about change when the book don't work challenging the boundaries 2012
  • 15. Jack L  18 year old man with C.P.  Significant I.D. + P.D. – no reliable communication  Loss of ROM in all joints  Low bone density “density of a 90 yr old”. #’s on movement. Currently #R patella #L humerus  High pressure risk – currently ulcer on sacrum and gluteal crease  Frequent seizures  Lives with his mother. Goes to several places for respite care when the book don't work challenging the boundaries 2012
  • 16. BIll L  Lives in residential service  Varied level of ‘skill’ in the team  “easy to lift”  Refusal from team to use hoist and sling  “hoist too hard, not enough space, takes too long”  Staff’s right to choose to do this? when the book don't work challenging the boundaries 2012
  • 17. rangI J • Mobile but occasionally falls • Once on floor difficult to get up • There is no hoist – and does not meet funding criteria for one in the home when the book don't work challenging the boundaries 2012
  • 18. hoW do you? B  Transfer from seat onto a prone wedge?
  • 19. Assist a person into a swimming pool where there is no pool hoist?
  • 20. Position someone in a contoured seating system without lifting, bending and twisting?
  • 21. IS there more to conSIder aBout?......  Physical closeness  “Therapeutic handling”  Essentials of life  Dignity of risk  Fitness of support person  Gender considerations  Cultural considerations

Notas del editor

  1. Jackie Therapy Services + self Liz self introduce self
  2. Liz
  3. Jackie
  4. Jackie Families for those living at home + in residential
  5. Jackie – risks for support person -Not evaluating the situation LITE Liz Risks for clients Injury clients losing function Losing independence and Risk of closing peoples lives down Losing opportunity to gain strength and skills e.g. Corey dignity motivation Pressure risks, seizures, medical
  6. Jackie
  7. LIZ Duty of care Dignity of risk - Liz story Right to choose Cognitive ability of client, family, support people Tension between home and work
  8. Liz These effect how we approach MH
  9. Handouts given out here break into groups here Use these as starting points for discussions
  10. Liz Peter does not like it Hoist takes up too much space Family not confident in using hoist What are the concerns? List questions for participants to answer e.g why might they not want a hoist in the home? How can this be resolved? Employer policy is not to lift Who’s concern is priority? Ceiling hoist Size of house Ability of family to learn to use the hoist
  11. Jackie Sam is a woman Mechanical solutions? Look up “she wee” Risk of wheeling person around house in hoist
  12. Jackie What is priority? Can Mary-Jane choose not to use the hoist? Options other than a hoist? “ duty of care”? Friction and shear Sleeves and cuffs (bring example) skin care
  13. Liz Reduced transfers but also needing to change position Need to support legs during transfers – often only one person present. weight of cast put pressure on femur as it became a fulcrum therefore had to support femur to prevent further # at school leg carried How do you get sling on him? Para-silk sling reduced need to put sling under him Spinal rod inserted for scoliosis – not able to lie prone for 1 year. Not able to lie on right due to # humerus or left due to # patella Seizures triggered by pain and stress All ulcers occurred following hospital admission Transported in hoist !!!! From bed to wheelchair in lounge as wheelchair with leg extensions would not go through door. Foot up on battery pack of hoist Used tilt in WC, + tilt to get him seated correctly in WC obtained equipment to use in other settings + lazy-boy, encouraged weight increase by supplementing intake, work with hospital, slide sheet Alternating air increased seizures – sound proof bag Used cushions to support humerus when that was the only #
  14. Spare Is there room to compromise?
  15. Spare What do you do? Decrease option for mobility? Call an ambulance? Staff training on how to get up – maybe a ‘lift’? Jackie to check with Enable re funding question
  16. Some prone wedges on floor height
  17. Getting sling in place