Redes colaborativas de personas con enfermedades crónicas
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Este documento describe el potencial de las redes colaborativas de pacientes con enfermedades crónicas. Señala que los pacientes (llamados "epacientes") están cada vez más involucrados en su propia salud a través del uso de Internet y las redes sociales. Comparten conocimientos e información sobre sus enfermedades con otros pacientes y profesionales, lo que puede generar nuevos conocimientos útiles para la investigación biomédica. También destaca iniciativas como Patientslikeme que funcionan como comunidades virtuales donde los pacientes se
![Redes colaborativas de personas con enfermedades crónicas: experiencias aprendidas y lecciones de futuro Dr.Manuel Armayones Grupo de Investigación PsiNET [email_address] @armayones [email_address] http://in3.uoc.edu/opencms/opencms/webs/grups_de_recerca/psinet/CA/](https://image.slidesharecdn.com/armayonescongresocronicos2011-110520100941-phpapp01/85/armayones-congreso-cronicos2011-1-320.jpg)
![Internet ya no es una “ventana al mundo” ES el Mundo entero [email_address] http://in3.uoc.edu/opencms/opencms/webs/grups_de_recerca/psinet/CA/](data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7)
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Redes colaborativas de personas con enfermedades crónicas
- 1. Redes colaborativas de personas con enfermedades crónicas: experiencias aprendidas y lecciones de futuro Dr.Manuel Armayones Grupo de Investigación PsiNET [email_address] @armayones [email_address] http://in3.uoc.edu/opencms/opencms/webs/grups_de_recerca/psinet/CA/
- 2. Internet ya no es una “ventana al mundo” ES el Mundo entero [email_address] http://in3.uoc.edu/opencms/opencms/webs/grups_de_recerca/psinet/CA/
- 3. En el campo de la Salud también se está viviendo una “revolución”: la de los ePacientes
- 10. Algunas iniciativas a tener en cuenta
- 18. Otras iniciativas cooperativas...a disposición de pacientes e investigadores.
- 20. Un ejemplo de Crowd Sourcing: ¿Asociaciones de pacientes financiando investigación?
- 21. Collective Intelligence+Crowd Sourcing: entre estudiantes, algunos de ellos pacientes con enfermedades crónicas
- 22. Investigadores preguntan: “legos” responden y TODOS GANAN (sobre todo los pacientes)
- 25. ¡Muchas gracias por su atención! [email_address] @armayones
Notas del editor
- Brief description: Internet is a common tool in our daily living that offers new possibilities for communicating and delivering health care treatments. One of these possibilities is to use Internet to create a community where professionals (such as psychologists) and caregivers can work together in order to generate processes to improve the quality of life, by providing caregivers with resources to cope with difficult situations. From this perspective, in this session, two projects aimed to improve quality of life of caregivers will be discussed. Psinet is a research group of the Internet Interdisciplinary Institute of the UOC. We work on Psychology, Health and the Net and now we are working on using the internet to improve the quality of life of different groups of people.
- Brief description: Internet is a common tool in our daily living that offers new possibilities for communicating and delivering health care treatments. One of these possibilities is to use Internet to create a community where professionals (such as psychologists) and caregivers can work together in order to generate processes to improve the quality of life, by providing caregivers with resources to cope with difficult situations. From this perspective, in this session, two projects aimed to improve quality of life of caregivers will be discussed. Psinet is a research group of the Internet Interdisciplinary Institute of the UOC. We work on Psychology, Health and the Net and now we are working on using the internet to improve the quality of life of different groups of people.
- Brief description: Internet is a common tool in our daily living that offers new possibilities for communicating and delivering health care treatments. One of these possibilities is to use Internet to create a community where professionals (such as psychologists) and caregivers can work together in order to generate processes to improve the quality of life, by providing caregivers with resources to cope with difficult situations. From this perspective, in this session, two projects aimed to improve quality of life of caregivers will be discussed. Psinet is a research group of the Internet Interdisciplinary Institute of the UOC. We work on Psychology, Health and the Net and now we are working on using the internet to improve the quality of life of different groups of people.
- Brief description: Internet is a common tool in our daily living that offers new possibilities for communicating and delivering health care treatments. One of these possibilities is to use Internet to create a community where professionals (such as psychologists) and caregivers can work together in order to generate processes to improve the quality of life, by providing caregivers with resources to cope with difficult situations. From this perspective, in this session, two projects aimed to improve quality of life of caregivers will be discussed. Psinet is a research group of the Internet Interdisciplinary Institute of the UOC. We work on Psychology, Health and the Net and now we are working on using the internet to improve the quality of life of different groups of people.
- Brief description: Internet is a common tool in our daily living that offers new possibilities for communicating and delivering health care treatments. One of these possibilities is to use Internet to create a community where professionals (such as psychologists) and caregivers can work together in order to generate processes to improve the quality of life, by providing caregivers with resources to cope with difficult situations. From this perspective, in this session, two projects aimed to improve quality of life of caregivers will be discussed. Psinet is a research group of the Internet Interdisciplinary Institute of the UOC. We work on Psychology, Health and the Net and now we are working on using the internet to improve the quality of life of different groups of people.
- Brief description: Internet is a common tool in our daily living that offers new possibilities for communicating and delivering health care treatments. One of these possibilities is to use Internet to create a community where professionals (such as psychologists) and caregivers can work together in order to generate processes to improve the quality of life, by providing caregivers with resources to cope with difficult situations. From this perspective, in this session, two projects aimed to improve quality of life of caregivers will be discussed. Psinet is a research group of the Internet Interdisciplinary Institute of the UOC. We work on Psychology, Health and the Net and now we are working on using the internet to improve the quality of life of different groups of people.
- Brief description: Internet is a common tool in our daily living that offers new possibilities for communicating and delivering health care treatments. One of these possibilities is to use Internet to create a community where professionals (such as psychologists) and caregivers can work together in order to generate processes to improve the quality of life, by providing caregivers with resources to cope with difficult situations. From this perspective, in this session, two projects aimed to improve quality of life of caregivers will be discussed. Psinet is a research group of the Internet Interdisciplinary Institute of the UOC. We work on Psychology, Health and the Net and now we are working on using the internet to improve the quality of life of different groups of people.
- Brief description: Internet is a common tool in our daily living that offers new possibilities for communicating and delivering health care treatments. One of these possibilities is to use Internet to create a community where professionals (such as psychologists) and caregivers can work together in order to generate processes to improve the quality of life, by providing caregivers with resources to cope with difficult situations. From this perspective, in this session, two projects aimed to improve quality of life of caregivers will be discussed. Psinet is a research group of the Internet Interdisciplinary Institute of the UOC. We work on Psychology, Health and the Net and now we are working on using the internet to improve the quality of life of different groups of people.